What Success Looks Like Post Encephalitis

Success? Hmmm. Are we measuring in miles or inches? In the interactions I’ve had with hundreds of survivors, success looks different from person to person even though survival looks similar. Regardless of how we acquired encephalitis … West Nile, auto-immune disorder, Herpes, Lyme’s, etc. the outcomes are similar. Memory loss, extreme fatigue, speech disorders and […]

When Words Don’t Come

“Still Alice” captures the dramatic nature of dementia in its recent release in theaters. Julianne Moore gracefully depicts the real-life trauma of forgetting and the unfortunate shame that accompanies that circumstance. If years lend us the opportunity to grow older, most of us will gradually meet this tragic and startling experience head on. As a […]

Encephalitis Survivor Tips Vol. 2

Brainstorming among the brain injured … now there’s an interesting way to spend a Saturday afternoon! At our Nov. 22nd survivor/caregiver meeting, these were the top mentions of helping us help ourselves. That’s what I call a successful brainstorm. Top tips: Listen to your body. Learn to pace yourself. It sounds so simple, yet we […]

Seize the Brain!

Asymptomatic, a beautiful word for someone who knows chronic illness. Today is one of the few days in nearly seven years I woke up with energy, a respite from the daily fatigue that squashes my creativity and challenges my temperament. Today the word “asymptomatic” rolls off my tongue with ease, absent of my usual fear […]