Blogs

Encephalitis Survivor Tips Vol. 2

Brainstorming among the brain injured … now there’s an interesting way to spend a Saturday afternoon! At our Nov. 22nd survivor/caregiver meeting, these were the top mentions of helping us help ourselves. That’s what I call a successful brainstorm. Top tips: Listen to your body. Learn to pace yourself. It sounds so simple, yet we […]

Seize the Brain!

Asymptomatic, a beautiful word for someone who knows chronic illness. Today is one of the few days in nearly seven years I woke up with energy, a respite from the daily fatigue that squashes my creativity and challenges my temperament. Today the word “asymptomatic” rolls off my tongue with ease, absent of my usual fear […]

The Power of Meeting Fellow Encephalitis Survivors

When I found the Encephalitis Global group on Inspire.com, I couldn’t believe the posts I read from fellow survivors and caregivers. It was as if they were reading my mind. If you haven’t connected with others affected by this cruel illness, I urge you to reach out. I can’t emphasize enough the healing aspect of […]

River of Tranquility

Making a tough decision or facing a health trial can create chaos for the soul. Today I take a break from promoting health tips for encephalitis or health challenges and address the healing aspect of nature. The River of Tranquility Peace flowing over the silky rocks with a steady cadence. Rustling leaves guided through the gushing path. […]

Encephalitis Survivor and Caregiver Tips Vol. 1

For those who attended the Dallas-area survivor/caregiver session this past weekend, it was awesome to connect with such great people. In the spirit of sharing our experience of tips and insights with others affected by this cruel illness, this post summarizes much of our discussion. For those who have not connected physically with others touched […]

6 Things I Learned from Robin Williams

Since hearing about Robin Williams’ death, I’ve been stunned at my reaction. How can I grieve over someone I never knew? I’ve paused to notice the richness he represents in influencing me and how his tragic death shakes me. Here are 6 things I’ve come to realize because of Robin Williams: Depression doesn’t discriminate. By […]

Go Home … It’s Only a Brain Injury

Imagine life as a parent heavily involved in their child’s life, the bread winner in a cut-throat corporate world, active in sports, a frequent traveler and public speaker. And suddenly all of that is taken away from something as simple as a mosquito bite … unable to read to their child, struggling with speech, never […]

Medical Doctors: 5 Things Brain Injured Patients Wish They Could Tell You

Brain injury survivors often have words that fail us at key moments, such as an important doctor appointment. Could be aphasia, but sometimes stress/fear prevents the words to ever form. After interacting with hundreds of brain injury survivors (mostly encephalitis), these themes surfaced that BI patients universally mentioned as desirable for their clinicians to know:  […]